Hi there, my name is travis love

Born with MPS 1, I am one of handful of people fighting against the horrendous statistics.  I have been told this terminal disease will slowly take away my life and have been beating the odds for…

What we did and should have seen at CES 2015

As it does every year, CES 2015 has come and gone like clockwork. Offering a tantalizing taste of upcoming consumer devices that maybe seen over the following year, and a brief look into a future of devices that may never see the light of day.

 

Consumers…

Depression Slows Me Down Like Bloatware

I guess if there's one other thing that I can be proud of, it is the fact that I've been blessed with the ability to self monitor fairly accurately. If I'm experiencing pain, or an emotion outside of the norm, then I get a hold of somebody to talk…

More like Casa Sana are needed in the world

Casa Sana is a nonprofit organization that has been around for about three years now and has been doing a lot of great international work in Peru.  Their focus has been on getting the young adults of the world the resources they need to ensure a future…

Life As an MPS 1 Adult: Enzyme Replacement Therapy

I was 16 years old when I was first asked to participate in a clinical research trial –– the second study of its kind –– for an up and coming therapy method called Enzyme Replacement Therapy (ERT), of a drug now named Aldurizyme (Al-dur-is-ime).  The…

Confused by Contradiction

it's funny how we go through life wanting the world and people in it to behave one way, and when we get what we want, we still have the gall to complain.  I see several examples of this every day when I'm going through my reading list of personal and…

My Issue With 'Death With Dignity'

We've all heard in one form or another, that Britney Maynard ended her life on November 1, 2014.  Moving to Portland after a diagnosis of terminal brain cancer, she took part in the state's extremely controversial death with dignity act. This term…

Just Keep Writing, Just Keep Writing, Writing, Writing...

I've been reading and listening to a lot of people talking about stepping out and doing your own thing, and being consistent about it. This has been mostly in connection with improving your writing skill, or small business ideas. But I can't help but…

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