Hi there, my name is travis love

Born with MPS 1, I am one of handful of people fighting against the horrendous statistics.  I have been told this terminal disease will slowly take away my life and have been beating the odds for…

Series: Life As an MPS 1 Adult

Growing up we observe certain behaviors and expectations within our family and society that influence how we conclude things ought to be, but with a rare disease like MPS 1, if you make it to adulthood, there becomes a struggle between expectation…

Expression of Hope 2015 Rare Disease Art Gallery

Every year, the biotech company Genzyme puts on a rare disease art gallery called "Expression of Hope." This is for individuals who suffer with lysosomal storage disorders to express their lives through many different types of art; painting, photography,…

Life As an MPS 1 Adult: Enzyme Replacement Therapy

I was 16 years old when I was first asked to participate in a clinical research trial –– the second study of its kind –– for an up and coming therapy method called Enzyme Replacement Therapy (ERT), of a drug now named Aldurizyme (Al-dur-is-ime).  The…

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