Hi there, my name is travis love

Born with MPS 1, I am one of handful of people fighting against the horrendous statistics.  I have been told this terminal disease will slowly take away my life and have been beating the odds for…

Coming Back from the Brink

If only I had taken my own advice. For the last couple months there has been a repeated phrase that I would constantly use; "pay attention." It's true when they say that the devil is in the details, if you are not paying close attention it's the little…

Can I Do a PlantPure Diet?

 I know many of my family and friends love to make fun and scoff at the mere idea that I would even desire vegetables in my life. As  hurtful as that could be sometimes, what people might not know about me is that over the last couple years I have…

The Art of Progressive Unemployment Episode Three

In my previous articles I've been using this term I have called "Progressive Unemployment", and it's the idea of being able to make a sustainable living not through a traditional 9-to-5 employer, but through the Internet's many sources of making revenue.

Saying…

What It's Like To Be Shamed Trying To Help

You know that feeling after posting something you worked hard on, and seeing that notification of your first comment? Warm and excited inside, you click and start reading those three horrible words. "Shame on you!" Immediately your stomach drops, and…

I missed the 4th of July and here is why

I'm trying not to be like every one of the countless other failing blogs out there that start off their post with; "it's been a while since I've posted something here..." But alas, it seems that is the only introduction that I can come up with at the…

How Do We Gain Hope?

After several long years I return to youtube with a question; 'I wonder if hope is a gift and not a pursuit'. I go down my philosophical rabbit trail exploring that hope has a greater impact when it is found from without. What do you think?

Depression Slows Me Down Like Bloatware

I guess if there's one other thing that I can be proud of, it is the fact that I've been blessed with the ability to self monitor fairly accurately. If I'm experiencing pain, or an emotion outside of the norm, then I get a hold of somebody to talk…

Life As an MPS 1 Adult: Enzyme Replacement Therapy

I was 16 years old when I was first asked to participate in a clinical research trial –– the second study of its kind –– for an up and coming therapy method called Enzyme Replacement Therapy (ERT), of a drug now named Aldurizyme (Al-dur-is-ime).  The…

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