Series: Life As an MPS 1 Adult

Growing up we observe certain behaviors and expectations within our family and society that influence how we conclude things ought to be, but with a rare disease like MPS 1, if you make it to adulthood, there becomes a struggle between expectation and reality.

As a man, I grew up with the drive to be a provider, with what some would call a conservative perspective of "manly" expectations. Along my path to adulthood I had to face some pretty uncommon experiences that forced me to deal with everyday topics.

Last Updated June 2016

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